What You Need In an Emergency

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    What scares you more — the emergency itself, or your brain freezing when it matters most?

    You’re not afraid of the sirens — you’re afraid of going blank. Every caregiver carries that unspoken fear.

    It’s not the medical crisis that keeps you up at night. It’s the moment your overloaded brain short-circuits under pressure.

    When the paramedic asks about medications and suddenly you can’t remember — was it 10mg or 15mg?

    When the ER nurse needs insurance info and you know you have it…

    Is it in your phone? That folder in the kitchen? The binder at home?

    You’re sure it’s somewhere, but somewhere isn’t good enough when someone you love is in trouble.

    You live with these details every day. But in that flood of adrenaline — when seconds matter and you’re the only bridge between scattered records and an ER team waiting on answers and your mind goes offline.

    And afterward?

    You’ll beat yourself up for forgetting what you never should’ve had to memorize in the first place.

    I learned this lesson the hardest way possible.

    The 2 AM Phone Call That Changed Everything

    The call came in the middle of the night. Mom was being taken to the emergency room by ambulance.

    I threw on clothes, grabbed my keys and wallet, and raced to meet her there.

    When I arrived, the ER staff was kind but firm:

    “We need her insurance information before you can go back to see her.”

    My stomach dropped.

    Her medical binder — the one with everything — was sitting on my kitchen counter. Insurance cards, medication lists, emergency contacts, medical history. All of it.
    Completely useless, because it wasn’t with me when I needed it most.

    So I had to leave. Drive home. Find the binder. Drive back.

    An hour round trip.

    While my mother, who has dementia and can’t hear without her hearing aids (left in her apartment) sat alone in a loud, confusing emergency room. Terrified.
    Unable to understand what was happening to her.

    That hour felt like forever. And it was completely preventable.

    I’d been so focused on being organized at home that I never stopped to ask what being prepared really meant.

    It’s not about having perfect files. It’s about having critical information accessible wherever you are, whenever you need it.

    What Actually Matters When Crisis Hits

    Here’s what I wish someone had told me:

    When adrenaline floods your system, your brain stops working the way it normally does. Details you know by heart become unreachable. Information that’s “just a phone call away” might as well be on Mars.

    The medical team needs answers immediately, and you’re their only source. They need:

    • Insurance information: not just the card, but the policy number, group number, and a customer service contact in case something doesn’t scan.

    • Current medications and dosages: including what was last taken, and who prescribed it. “That little white pill for his heart” isn’t enough.

    • Emergency contacts: family members, doctor(s), pharmacy. And yes, they need phone numbers that work at 3 AM.

    • Relevant medical history: allergies, chronic conditions, past surgeries, devices (like hearing aids, pacemakers, etc.).

    • Hospital preferences and advance directives: which ERs are in-network, DNR status, or specific instructions.

    This isn’t information you can wing or approximate. In a medical crisis, “I think it’s 10mg but it might be 15” could make the difference between safety and harm.

    The Two-Part System That Actually Works

    After my wake-up call, I built a system based on two simple principles:

    1. Information at Your Fingertips

    Your loved one’s medical essentials need to live somewhere you can access immediately, from any device.

    • Not locked behind apps with forgotten passwords.

    • Not scattered across portals that don’t work after hours.

    • Not printed in a binder that’s sitting at home while you’re standing in an ER.

    Ask yourself this:

    If you got a call right now that your loved one was being rushed to the hospital, could you get medical staff the critical info they need — within 5 minutes?

    If the answer is no, you’re not alone. Most of us aren’t there yet.

    The key is consolidation.

    One single place where it all lives — accessible on your phone, shareable with family, and simple enough to use while your heart is racing.

    Some caregivers use laminated cards. Others use apps or digital hubs.

    The method doesn’t matter. What matters is this:

    When your brain goes offline, your system stays online.

    2. The Go-Bag Strategy

    Information is only half the equation. You also need to be physically prepared for the unexpected.

    I keep two small bags packed and ready at all times.

    For my husband Ed:

    • A change of comfortable clothes

    • His hearing aids + charger

    • A comfort item (like a small photo or fidget)

    • A copy of his medical ID card

    • Current medications — documented using pharmacy printouts

    Instead of hauling around full prescription bottles (which isn’t always practical), I use the label copies our pharmacy gives us when we pick up his meds. I cut them out and stick them onto index cards — one per medication — so all the critical details are there: med name, dosage, prescribing doctor, refill date. It’s fast, lightweight, and way easier to hand off in an emergency.

    For me:

    • Change of clothes

    • Phone charger

    • Snacks

    • A little cash

    • Copies of key documents

    These aren’t big suitcases, it’s a backpack that lives in our bedroom closet and can be grabbed in seconds.

    I update Ed’s meds every time they change, and check both bags every few months for expired items.

    The goal isn’t perfection. It’s readiness — and removing as many decisions as possible in the middle of chaos.

    Building Your Emergency Readiness

    Start small.

    You don’t need a perfect system tomorrow. You just need to take one step toward readiness today.

    Begin with the non-negotiables:

    • Insurance information

    • Current medications

    • Emergency contacts

    Put them in one place you can reach quickly — from your phone, computer, or physical copy.

    Then test it:

    If you got a call right now, could you hand off the essentials in under 2 minutes?

    If not, simplify until you can.

    Involve your family if needed. You may not be the one who gets the call, or the one riding in the ambulance. Someone else may need to step in, and they need to know where to look.

    The truth? Most of us don’t think about emergency prep until we’re living through one, unprepared. But you don’t have to learn this lesson the hard way.

    When Preparation Meets Peace of Mind

    I can’t prevent every emergency. But I’ll never again have to leave my husband’s side because I didn’t have the information the doctors needed.

    That peace of mind? It’s everything, or as the old commercial used to say, “priceless”.

    Because the real fear was never the emergency itself. It was being unable to help when help was needed most.

    Now, when the call comes — and in our world, it probably will — I’m ready to do what matters:

    Be present. Advocate for his care. And make sure he’s not alone.

    Your loved one doesn’t need you to be perfect. They need you to be prepared. The difference between the two might just save their life.


    IMPORTANT: This website is informational only and does not provide medical advice, diagnosis, or treatment. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

     

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    Susan Hand

    This article was written by me, Susan Hand creator and writer behind LBD Caregivers where I share practical guides and real-world advice for navigating Lewy Body Dementia.

    My husband was diagnosed with Lewy Body Dementia 5 years ago. Now I’m passionate about helping & educating other caregivers so their journey might be a little bit easier.

    I love quiet mornings with a good chai latte, escaping to Kiawah Island along the banks of the Carolinas with the family, and spending as much time as possible with the love of my life. My idea of self-care as a caregiver includes lunch with the ladies and painting watercolors in my studio.

    https://lbdcaregivers.com
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